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PhD Graduate Explores Shared Decision‑Making in End‑of‑Life Cancer Care

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PhD defended on “samvalg” for incurable cancer patients Jannicke Rabben, 49, completed her dissertation on shared decision‑making—called “samvalg” in Norwegian—and examined nurses’ contributions to these processes [1].

Two decades of cancer‑care experience informed the research She spent ten years as a cancer nurse and another ten at the Norwegian Cancer Society (Kreftforeningen), focusing on user perspectives, which motivated her study [1].

Methodology combined literature review and two interview studies The work began with a synthesis of prior qualitative research, followed by interviews with patients and relatives in one study and with nurses in another [1].

Findings reveal complex, uncertain life‑and‑death decisions Participants reported feeling ill‑equipped to voice opinions; nurses encountered ethical dilemmas and sometimes observed patients receiving unbalanced information, questioning their own mandate to supplement doctors [1].

Relatives often feel sidelined in the decision process Many family members described staying on the sidelines, acknowledging the patient’s authority while rarely expressing their own views openly [1].

Rabben returns to University of Agder with new responsibilities After submitting the dissertation in August, she resumed a permanent role at the university, taking on additional tasks and helping run a master’s program in cancer nursing; she took a summer vacation before final submission [1].

  • Jannicke Rabben (PhD candidate, nursing): “Jeg har skrevet om det man på norsk kaller samvalg, shared decision making, eller felles beslutningsprosess, som jeg liker å kalle det, i situasjoner der man har fått uhelbredelig kreft.”
  • Jannicke Rabben: “Jeg følte meg tidvis som en ungjente på utrygg grunn… men selv om man kan bli skikkelig frustrert, er man alt i alt privilegert som stipendiat som får drive med dette på fulltid.”

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